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Showing posts with the label Chronic Illness

Resilience Through the Storm: My Journey with Severe Rheumatoid Arthritis

 My Journey with Rheumatoid Arthritis: Finding Strength Through Uncertainty A Life-Changing Diagnosis Thirty years ago, I sat in my rheumatologist's office for the first time, and her words still echo in my mind: "Your RA is very severe, affecting all your joints, from your jaw to your toes." It was a moment that catapulted me into an unfamiliar world, where my hands were stiff, swollen, and sore, and my feet had already begun to show signs of changes, with claw and hammer toes. Even walking became a challenge, but the reality of my situation went beyond the physical pain. The Impact on Family and Future Plans At that time, my husband and I were planning for the future, hoping to have another child—a girl, perhaps. However, my rheumatologist cautioned me that the medications I would need to take could make pregnancy impossible. The rapid changes in my health forced us to shift our focus. We had to come to terms with the unpredictable nature of living with a chronic diseas...

Arthritis Unplugged: Harnessing Music and Practical Solutions to Manage Your Day

 Navigating the Rollercoaster of Arthritis: Embracing the Ups and Downs Living with arthritis often feels like being on a never-ending rollercoaster, marked by highs of manageable days and lows that can be physically and emotionally draining. One moment, you might wake up feeling relatively good—able to get out of bed, complete your morning routine with minimal discomfort, and even enjoy a cup of coffee without feeling hindered. But by the afternoon, fatigue can hit you with a force that leaves you struggling to stay awake and complete even the simplest tasks. Understanding Fatigue in Arthritis The fatigue associated with arthritis is not the same as general tiredness. It’s a profound, pervasive exhaustion that impacts every aspect of your day. This deep-seated weariness can cloud your thoughts, drain your energy, and make even minor activities seem Herculean. Unlike ordinary fatigue, pushing through this type of exhaustion often exacerbates the problem rather than alleviating it. ...

A Journey Through the Early Days of RA

  A Journey Through the Early Days of RA: From Diagnosis to Adapting to Life When I was 33 years old, my world changed dramatically. I was diagnosed with severe rheumatoid arthritis (RA), a condition that would become an intricate part of my daily life. At that time, I was a mother to two young sons—one was just 3 years old, and the other was a teenager of 13. Little did we know how much our lives were about to be tested. One morning, I woke up and found that I couldn’t move from my neck down. Panic set in as I realized the gravity of my situation. My ex-husband had to help me out of bed, get me dressed, and navigate me down the stairs to the car. The journey to our GP’s office was arduous. Each step was a struggle, but we managed to arrive. The GP observed me as I walked painfully down the hallway to the exam room. I described my symptoms: excruciating joint pain, stiffness in my hands, aching knees, and sore feet. The simple act of getting in and out of the car had become a Hercu...